Hopeful Cyster

Monday, August 28, 2006

Where is the Help!?!?

Yesterday I went to Barn's & Nobles to buy some books my husband needed for school. While he was looking for the things he needed, I went to the health section and I was looking through the women's health section, there were so many books on menopause, diet, mental health, A whole new section on pregnancy, AIDS, and so many other subjects. I was actually looking for a book on infertility especially PCOS. I found only ONE book on causes of infertility in which only a page was dedicated to PCOS. There was one book on PCOS, I grabbed it and started reading it. Most of the information in the book was information I already knew. But what surprised me was that out of over thousand of books in that store only one was about PCOS, a problem that more than 8% of women have.

I started thinking of my past experience with doctors. Not a lot of doctors know about this syndrome and those who do know about it don't know much. It took 10 doctors before I was told I had PCOS. And not even that....The doctor told me I had Stein-Leventhal syndrome. I was 16 years old, How was I supposed to know what that was. All the doctor said was that it was an imbalance of hormones that affected my ovaries. That explanation did not help at all. (and he wasn't even right) I went home and did some research on-line. (And I am still doing research). Doctors don't know what this syndrome is, how it affects women (physically and mentally) or what to do to help us. The doctor gave me bcp to treat PCOS, they didn't help much. And now that I read some bloggs here I found that there are other medications to treat this. Why was I never told!!!!

Most doctors are in school for over 10 years. Why don't they know about a problem this problem. Why is it so hard to find help.

The more I read about this syndrome the more frustrated I get!!!

Thursday, August 24, 2006

Here we go!!

Today will be my first day using this blog. I found this blog site when i was looking for people (Women) who had been on Clomid due to IF issues. I found that so many women suffer from infertility and more importantly so many of you suffer form PCOS. There aren't many poeple I can talk to about this syndrome. To be able to have a real conversation and let your guts spill you will have to find a person who is going through somewhat the same thing, so they understad what your taking about when you tell them the hormone hell your in.

I read about The Common Thread. I think it's great to make society aware of this problem.

I was diagnosed with PCOS when I was 16. I have had other hormone problems befre then. I have been on the bcp since I was 12. Last August I married. I knew it was going to be difficult to get pregnant, but I wasn't expecting all the emotional pain that comes with it.

I haven't started any treatment....yet. I am having the preliminary testing. But already I can feel that this will be a bumpy trip.

I know many of you have gone through this, and I want to know how you did it (for those of you with kids) and how you're dealing with it (for those of you who haven't made it...YET!!)